The Crap that Goes with Life

Seriously, when does all the crappy crap crap end? Ok, don’t answer that because I am assuming it is when we die but, I would just like some nice for a while ok?

Our boy, Brady Bailey-Wilkinson passed away in my arms on the 27th of September, in my living room when the vet injected the fatal green liquid into his veins. There was no more that our boy could give. He’d had enough. He was tired. It was time. Cancer took my baby boy from me.

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What really makes me angry is that my beautiful boy nursed me through my very own shitty cancer. He had a paw on my knee constantly, his beautiful eyes looked lovingly at me and his cuddles were never lacking.

This is the paw print we took of our boys paw the night before he passed away. Thank you so very much to my friend Lauren Kennedy for supplying the paint, canvas and love. This paw print of my boy Brady will  be tattooed on to my thigh, just above my knee, where Brady used to always rest his paw.

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What I will never complain about is the extra time we had with our boy. Too often we hear of a pet or person being lost in an instant. No time to spoil them or say goodbye. Car accident, stroke or heart attack. Thankfully, we had a couple of weeks to thank Brady for being with us and for those cuddles, laughs, sobs and giggles.

These photos are from my amazing sister Annette who bought lovely gifts and messages for Brady. Kally wrote some gorgeous messages to Brady which I will treasure forever.

There was night after night of delicious dinners for that amazing guy. Cuddles galore and beautiful memories made.

The greatest thing we did was have a ‘We Love You Brady’ party. Grandma, Nana and Poppa, sister Accalia, Auntie Annette and cousins Jordan and Kally, Mama and Papa were all there to celebrate Brady’s amazing contribution to our lives as well as his amazing, relaxed, loved up and funny life. He was inundated with gifts, love and food. Funny things happened through the day including Brady being ever so focused on Kally’s gluten free scone. If nothing else happened that day, Brady really wanted to have this scone. When everyone had gone for the day, Brady was absolutely pooped but the smile on his face was unmistakable.

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Papa Sam cooked up an amazing ginormous almost dinosaur looking bone for Brady that day and I thought his eyeballs (Brady’s, not Sams) were going to pop right out of his head! He also had an entree of cheese and sausage which, as you can see, he was pretty darn happy about.

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Grandma bought some special gifts for our boy being a funny and strange green toy and some lovely home made peanut butter dog cookies. Kelly got the orange toy and left over cookies.

Big Sis and Little Bro

Ok, I’m rambling because things haven’t gotten easier since the passing of my amazing and special gorgeous boy.

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We had some awful and horrible news that another of our amazing family is now battling breast cancer. No, please don’t pry asking who and what and so forth because not everyone is as open as I am and this is their story, not mine, but, I can honestly say, this is shit. Has our wonderful family not done their time with this horrible disease? We have had beautiful and gorgeous people in my ‘old’ and ‘new’ family have to deal with this and it is just not fair. Enough is enough.

There are some really shitty crappy people in this world who deserve to be struck down with some shit arse disease but not the people I am hearing about. Stop it. Leave the good people alone and strike down the pedophiles, the people who pretend to have cancer to gain funds or fame, the horrible people who murder, rape or are horrible to animals. Why does this happen to nice and innocent people and animals?

On a nicer note, all going well with stage 1 of reconstruction. I’ll touch base again soon with more information on the recon and next stage of letting go of the cancer journey.

xx Mrs Wilkinson xx

The Bright Side of Fat

 

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Facebook kinda shits me here and there as to how commercial and whatnot it is but, there are times, when I get that ‘Facebook Memory’ as to what I posted a while ago and, this came up today. I remember so clearly this photo being taken and even though my gorgeous daughter was being silly, I still felt an amazing sense of pride for being her Mum. Nine years ago this photo was taken at my cousin Christine’s 40th Birthday party! OMG, that means my cousin Christine is going to be….. 50 oh so soon. Anyhoo, this photo of ‘the kid and I’ is very special to me. It is before I became a Coeliac and before I knew I had stage 3 breast cancer.

Moving On.

So, this was the week for me to meet with my surgeon to discuss the surgery I want/need early next year. The reason I would like this surgery early next year is because

  1.      I would like to be done with Breast Cancer
  2.      My wedding is in November 2017 and I would like 2 boobs for it
  3.      What does it matter? Just give me another boob please!

So, off to Mr Jim Kollias on Wednesday to discuss my upcoming surgery and to have my 6th monthly Breast Cancer check. Actually, from here on in, I am thinking I wont bother with writing breast cancer with capitals. I recall from school that capital letters were for proper words and those of being ‘important’. Well, you know what Oh Serious Breast Cancer? I have demoted you to lower case from now on!

Right, now we have that straight, let me continue…..

Mr Kollias has many names throughout South Australia and most of them good. Don’t get me wrong, I am going to BAG the SHIT out of him in this post but know this, he is the best in the business ok? Anyhoo… this is how it happened….

Into the lovely little office I went, went through the formalities of me looking great and me saying thank you blah blah and, off to the back room I go to rid myself of my tops and bras and sit on the bed to wait…

Now, keep in mind that Mr James Kollias, being the best in the Breast Cancer field in South Australia, keeps you protected, safe and bubble wrapped the entire time you are dealing with breast cancer. He will do everything humanly possible to rid your body of the cancer and make you feel A OK. You only have to do as you are told and he will make everything happen for you.

Once your breast cancer has been cut out, chemotherapied, radiologied, blitzed with drugs and sleep and some more drugs and more surgery, then comes along the true to life, the honest and IN YOUR FACE Mr Kollias.

There are no more warm snugly cuddly hugs of comfort, no more Mr Nice Guy.

He has always told us how it is when it came to my Stage 3 Breast Cancer but, I always felt safe and snuggly within his words. He was the Captain of our Ship. He would ensure everything happened correctly and his way. My only job on this ship was to follow his orders.

And I did feel all safe and snugly and protected and loved. Until NOW.

Now, I am FAT and ROUND!

On Wednesday the 5th of October 2015 (311 Days Since Mr Kollias and I met) I was meeting him again but this time to discuss my Reconstruction Left Breast Surgery.

I am requiring, wanting and possibly even needing a particular surgery called a TRAM Flap. TRAM stands for transverse rectus abdominis, a muscle in your lower abdomen between your waist and your pubic bone. A flap of this skin, fat, and all or part of the underlying rectus abdominus (“6-pack”) muscle are used to reconstruct the breast in a TRAM flap procedure.

While it’s the most popular flap reconstruction procedure, a TRAM flap isn’t for everyone. It’s not a good choice for:

  • thin women who don’t have enough extra belly tissue
  • women who already have had multiple abdominal surgeries
  • women who plan on getting pregnant
  • women who are concerned about losing strength in their lower abdomen

So, my big belly and myself are thinking, HOOK ME UP BIG BOY, because I am none of the above and more than that, HOOK ME UP TO THOSE SKINNY BITCHES THAT DON’T HAVE ENOUGH EXTRA BELLY TISSUE, I HAVE ENOUGH FOR EVERYBOOOOOODY.

Mr Kollias does not find this helpful OR amusing. Sometimes I wonder how Mr Kollias and I even get along!

Right, back to it….

I am now laying on the medical bed which is not comfortable nor relaxing and Mr Kollias starts the examination. I would have assumed he would have started with Ms Rightie, my lonely breast that stands alone… but no, he starts with my belly. He GRABS a big fist full of the belly area and wibbles and wobbles it up and down as though it isn’t actually attached to me (BUT IT IS)  and says,

“Wow, this is very large. YOU are incredibly ROUND’. This is a lot of FAT”.

I kid you not!

I am laying on this bed, with my one amazing but sagging boobie and my big gutses hanging out, feeling oh so vulnerable while he, the amazing Mr K, proceeds to tell me how round and fat I am.

I KNOW I AM FAT FFS!

No, I do not say this out loud.

So, as I lay on that oh so uncomfortable bed, with my gutses hanging out, trying to think of something else, he, Mr Kollias, is grabbing handfulls of flab (yep, that’s my stomach) wibbling and wobbling up and down, still saying the words ROUND and FAT and I CAN’T WORK WITH THIS, I sink deeper and deeper into some daze like meditation.

Ok, I am no fool. I know I am fat. But for f*cks sake. Give me a break! I can’t use the ‘cancer card’ with Mr Kollias because he has been there with me from start til now. He is trying to tell me that

  1. The more fat I have, the more likely I will be to get cancer, especially breast cancer, again
  2. He can not operate on a fat person due to the risks involved
  3. He can not operate on a fat person for a TRANS Flap thingy without putting them ‘at risk’

Right then, after four rounds of him grabbing my gutses, told I am ever so ROUND, and that he can’t operate the way I want without a risk, It is thankfully now time for me to dress and smash his face in.

Ok fine, I didn’t smash his face in but I really wanted too!

Anyhoo, I dressed and went back to his ‘meeting room’ and sat in front of him while he proceeded to tell me that he can not do the surgery I wanted because I was EVER SO ROUND.

ARGH!

Right, he says to me that in order to do the operation the he and I want to have done he wants me to lose 10 kilos by January 10th.

I’m not sure if you remember he wanted me to lose over 20 Kilos previously but I would be dead if I tried to do that so, we are negotiating now like a car buyer v’s a car salesman. Mr Kollias is the Salesman ok?

We go back and forth for a while and agree on a 7.5 Kilo weight loss for him to do the surgery. That means I have to be below 75 kilos by January 10th, 2017.

Oh so easy I hear you say. IT IS NOT EASY I SCREAM BACK AT YOU!

Ok fine, I’ll try to calm down but let me finish with the conversation with the ever so amazing Mr K.

I tell him that I tried to lose weight for him from our previous catch up which resulted in breaking two bones in my ankle.

He says, hmmm, that’s really just an excuse.

I say, well, I am a coealiac and don’t eat any junk food… and he just glares at me.

I then tell him I have lost 2 kilos recently and he says, two kilos is not a weight loss, it is a poo! and then proceeds to blow a raspberry at me!

Then, I tell him I have started taking duromine and he tells me that chemicals are NOT the answer.

Right about now I should be receiving a bloody award for ‘not murdering’ someone.

There are no awards coming my way, no cameras and bunches of flowers or miracle weight loss fairy dust, just Mr K looking at me.

So, I say to the ever so amazing Mr Kollias, “What do you suggest I do?” and his reply, (get ready to inhale a big disgusted gasp”

“stop eating”

OMG, is that even legal? Are you aloud to say that to me?

Well, I think yes. BUT, the problem is, now that I am taking this Duromine (appetite suppressant which I think is broken) my meal sizes have reduced, I’m not snacking anywhere near as much as before blah blah blah….. and then I quietly, under my breath, say….. Do you think I should stop drinking alcohol?

Well, doesn’t that open the bloody flood gates?! Out it all comes from the Breast Cancer God of South Australia telling me if I stop drinking today, I’ll lose 3 Kilos in a week and then I’ll lose another 3 kilos in the next three weeks which is almost at my goal weight for the surgery!

He is looking at me like I am some very backward hick born child!

I haven’t even told him how much I drink (Thank Goodness!)

So, There we have it peeps.

As I sit here, looking at my lovely glass of sparkling wine, I know that it is one of the last as I HAVE TO LOSE THIS WEIGHT. Not just for Mr Kollias but for myself to have the surgery I want.

There is an alternative surgery involving using my back fat with expanders and then silicon blah blah but no, that isn’t what I want.

I want the stomach one, where there will be no artificial products in my body.

After all of the chemo and radiation, I am thinking I would like to repair my body with my body.

So, There we have it.

I have been angry, sad, angry again and everything in between since my appointment with Mr James Kollias on Wednesday but, at the end of the day, he is only doing what is best for me.

What really shits me through all of this is, I forgot to tell my amazing and incredible surgeon about the lump I was worried about! Thankfully he had done a thorough examination while I was there of good ol’ rightie and obviously didn’t find anything to be worried about.

Sorry it has been so long since my last post. Thank you for all of the ‘behind the scenes’ messages and in my face messages.

Love to you all. Stick with me. I am doing this ok? I am going to give it my all to lose that darn 7.5 kilos.

A thank you to the Encore Program for taking me in. I am going to fill you all in about this Encore Program from the YWCA soon.  Hopefully, work works with me on this one 🙂

I don’t do shout out’s very often do I?  I am going to today.

My shout outs are…

Veronica Stanbridge : for listening to me sook and cry and worry about the stupid lump that turned out to be nothing. I know how hard this is for you to relive this horrible disease after your amazing sister Maggie passed away from it. Veronica ‘Amazing’ Stanbridge is in the black 🙂

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Mandy Azzam: Yep, I might know when you are not coping with things but you give it back knowing when I am not doing so well. I love that you leave me be until our lunch dates when I let it all out.

Tamara Martin: You always know when I’m having a bad day. Not through my actual voice but through the voice of our emails. Thankyou for knowing when I don’t want to talk but really want to talk. You know me too well.

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My bestie Tam

Everyone in my life means so much to me. Please don’t be displeased to not find your name here but it is Friday night after a huge week at work and, it has been a tough week for me. Everyone who is in my life, with true honesty and love (eg: no backstabbing or bullshit) means so much to me.

xx

Soon to be ‘two boobed bailey’

 

 

Chemo wins this time…

I feel like absolute and utter shit. Beside my ‘party night’ following chemo arvo, I have done nothing but sleep.

Ok, well Dr Hands did wake me on Friday morning for my pre chemo tablets, water, breakfast and coffee. Then I got up a sometime in the afternoon for all of about half an hour to see the future in laws who’d popped in. Up again at 6pm for Dr George to visit to stab me with the ‘day after chemo’ injection, have dinner and back to bed. What really annoyed me about Dr George’s visit was that he said I am not even to open the front door because of the icy cold winds that could get into my chest.

But I wanted to go to the Gluten Free expo today (Saturday)  😦 well that went out the window pretty quick. Beside the fact I couldn’t even get out of bed for more than half an hour. Sam did let me sleep until midday before feeding, drugging and watering me and mentioning I might need to pop into the shower before I went back to sleep.

The best thing about getting out of todays shower (beside smelling and feeling fresh and moisturised) was that Sam had changed all of the linen! Ok, none of it might not match but it is all clean and beautiful smelling and made for a lovely sleep.

Awake again for some dinner which was a tough task tonight. I opted for cheese and crackers. Sam was not at all happy with that choice but look who was…

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Yep, my Brady Boy absolutely loved my cheese and crackers. Not all of them, I did eat some but ugh, my stomach just doesn’t want any food.

What made me almost laugh my hemorrhoids out was Sams comments of me losing weight too quickly. Now, those of you who don’t know me, I am a pretty big girl. I have lost 5 kilos in about two months and I really dont think that is a fast weight loss but ya just gotta love his concern all the same. So Sam, Kelly, Brady and I all enjoyed some roast chicken, yes, a fair bit went to Brady from my side but I did eat some and will be heading back to bed soon.

Hopefully I wake up feeling AMAZING and can attend the gluten free expo…. fingers crossed.

Cheese.

Here is a recent conversation between Dr Hands (aka Sam) and I. This is not an uncommon way that we communicate.

Sam: What are you eating?

Me: Cheese

Sam: What did the Nurse in the Oncology ward say NOT to eat?

Me: Cheese

Sam: So, why are you eating it?

Me: Um, Cheese….

cheese