Seriously, when does all the crappy crap crap end? Ok, don’t answer that because I am assuming it is when we die but, I would just like some nice for a while ok?
Our boy, Brady Bailey-Wilkinson passed away in my arms on the 27th of September, in my living room when the vet injected the fatal green liquid into his veins. There was no more that our boy could give. He’d had enough. He was tired. It was time. Cancer took my baby boy from me.
What really makes me angry is that my beautiful boy nursed me through my very own shitty cancer. He had a paw on my knee constantly, his beautiful eyes looked lovingly at me and his cuddles were never lacking.
This is the paw print we took of our boys paw the night before he passed away. Thank you so very much to my friend Lauren Kennedy for supplying the paint, canvas and love. This paw print of my boy Brady will be tattooed on to my thigh, just above my knee, where Brady used to always rest his paw.
What I will never complain about is the extra time we had with our boy. Too often we hear of a pet or person being lost in an instant. No time to spoil them or say goodbye. Car accident, stroke or heart attack. Thankfully, we had a couple of weeks to thank Brady for being with us and for those cuddles, laughs, sobs and giggles.
These photos are from my amazing sister Annette who bought lovely gifts and messages for Brady. Kally wrote some gorgeous messages to Brady which I will treasure forever.
There was night after night of delicious dinners for that amazing guy. Cuddles galore and beautiful memories made.
The greatest thing we did was have a ‘We Love You Brady’ party. Grandma, Nana and Poppa, sister Accalia, Auntie Annette and cousins Jordan and Kally, Mama and Papa were all there to celebrate Brady’s amazing contribution to our lives as well as his amazing, relaxed, loved up and funny life. He was inundated with gifts, love and food. Funny things happened through the day including Brady being ever so focused on Kally’s gluten free scone. If nothing else happened that day, Brady really wanted to have this scone. When everyone had gone for the day, Brady was absolutely pooped but the smile on his face was unmistakable.
Papa Sam cooked up an amazing ginormous almost dinosaur looking bone for Brady that day and I thought his eyeballs (Brady’s, not Sams) were going to pop right out of his head! He also had an entree of cheese and sausage which, as you can see, he was pretty darn happy about.
Grandma bought some special gifts for our boy being a funny and strange green toy and some lovely home made peanut butter dog cookies. Kelly got the orange toy and left over cookies.
Ok, I’m rambling because things haven’t gotten easier since the passing of my amazing and special gorgeous boy.
We had some awful and horrible news that another of our amazing family is now battling breast cancer. No, please don’t pry asking who and what and so forth because not everyone is as open as I am and this is their story, not mine, but, I can honestly say, this is shit. Has our wonderful family not done their time with this horrible disease? We have had beautiful and gorgeous people in my ‘old’ and ‘new’ family have to deal with this and it is just not fair. Enough is enough.
There are some really shitty crappy people in this world who deserve to be struck down with some shit arse disease but not the people I am hearing about. Stop it. Leave the good people alone and strike down the pedophiles, the people who pretend to have cancer to gain funds or fame, the horrible people who murder, rape or are horrible to animals. Why does this happen to nice and innocent people and animals?
On a nicer note, all going well with stage 1 of reconstruction. I’ll touch base again soon with more information on the recon and next stage of letting go of the cancer journey.
I cried because my beautiful boy looked at me with his beautiful big brown eyes. He looked like he was sad.
He looked like he was loving me.
He looked like he was happy.
You decide what he looked like.
I have watched him all day, hobbling, sniffing, being incredibly uncomfortable, strange breathing while sleeping and bringing me toys. He is still doing dog things, Brady things but, he isn’t our Brady anymore.
He is riddled with an incurable cancer. He is in pain. He is sad.
I cry because I don’t know when it is ‘time’.
How do I know that he has had enough?
I don’t want to wait until he is exhausted but I don’t want to do it when he is still brining me a ball to throw for him.
I have loved sharing my life with Brady but right now, I hate it. I am so confused and lost.
Brady is as loving as ever but I fear his time is near.
I can’t wait for his surprise BBQ party on Sunday but I fear what follows it.
Do not scroll down if you do not want to see my stomach. (Sorry if my stomach shows up in any of your browsers because I am not totally aware of how to keep certain photos hidden) It isn’t too bad to look at but I have been looking at it for four weeks now so am pretty used to is. It is a cut from hip to hip but don’t worry, it is all stitched up AND, you can see my new belly button.
The reason this area was cut to pieces was so they could use a flap of skin and a whole heap of my tummy fat to build a new boob for me.
You’ll also be able to see my amazing photoshopping aaahahah but honestly, this is why I am unable to drive, bend, sneeze comfortably, have husband and wife time, walk semi decent distances and also why I tend to say, geez my stomach hurts a bit today!
Just a little more…
ok, I couldn’t work out how to post the photo without it showing on your facebook feed with my stomach there for you to see weather you want to see it or not. Also, I can’t work out how to delete this blog post LOL. I’ll work it out later. sorry folks…
Please be advised I have permission from my husband to post the photo at the end of the post of my ‘war zone’ post breast removal – pre boob reconstruction site. 🙂
Here is a photo of my gorgeous daughter who never fails to make me smile whether I am in her presence or simply just thinking about her….. so, lets start my New Boob blog part 1
Right, this is the start of a multi part series on my new boob.
My aim is to cover a few things.
Why do I want to reconstruct my breast?
Why don’t I want to reconstruct my breast?
What does the ‘bomb site’ look like right now?
How is it going to be reconstructed?
The high price of private health insurance in Australia. Are you totally covered?
The physical, mental and financial pain
Working for an understanding company
The support from co-workers
Some other ramblings in my head
It has been over two years since I lost my left breast to stage three breast cancer. Now, it is time for a new and improved model to move on in.
There will be no technical terms going on in this post, or even future posts because seriously, who can remember all this mumbo jumbo the surgeons and doctors and anaesthetists use so I shall be me and use normal words and terms.
Thankfully, I was strong enough to lose the weight required by Mr Kollias who so delicately demanded I lose (You are too fat, I can’t work with this (as he grabs my stomach and wobbles it up and down and round and round) he says to me on a few occasions). Thankfully I have no feelings and his words have no emotional effect on me. This is one thing I really do like about my surgeon. The actual thing about him finding it difficult to work on me wasn’t so much about me being fat but that I was ‘solid fat’ and not ‘floppy fat’. It is easier and tidier to work with floppy fat as opposed to solid fat.
I initially really struggled with making the decision to have my breast reconstruction because, get this, I didn’t want to lose my new body. The flat left side where my cancerous breast used to live suddenly became a really important part of me. The scar and little plump fake cleavage is something that I have actually grown to love. I don’t love having to wear a prosthetic everyday in my bra as it can get quite warm and cumbersome and now that my body has changed, the prosthetic breast (called Dolly) and the right saggy baggy boobie just don’t match. No one else can tell and I know this but I can tell and it looks bloody stupid but, it is me. The new and improved me. So, why do I need to change it?
Anyhoo, I really wasn’t sure I wanted to put myself through more surgery, pain, financial strain (I am going to get to this bit a little later) and the time off work.
My new husband, the man who has seen me through all of this breast cancer bizzo, had a serious talk with me (that is a very rare thing in my household) about having this surgery. He said, and he is right, that it would be a very beneficial thing for me to do for my mental state. He sees how uncomfortable I am if he walks in on me in the shower, when I get up in the morning (yep, am a nudie rudie sleeper), and when I am braless.
Usually, I don’t give a hoot what people think about me, of my dress sense (or lack there off), the car I drive, what my hair looks like and even some of the things that come out of my mouth. It has surprised me that I am still, after two years, uncomfortable being naked in front of the man who has been with me through thick and thin, good times and bad, in sickness and in health – o hang on, this isn’t my wedding blog hehe. But you see where I am going with this don’t you?
I really had a long think about what he had to say (again, a rare thing in this household hehe) and he is right (I know! Strange hey?). I do need to do this for me and my mental health. I know I am not going to be looking like I was before and that is definitely not what I am after. My goal here is not to replace what was taken from me.
What I am after is a feeling of balance (hehe) and comfort. The new breast is going to be built from the fat from my stomach. There will be no implants or expanders because I feel I have more than enough recourses in my body to create what I need here.
Before anyone gets on their moral high horse and decides to have a go at me about the implant/expander thing… I have absolutely no issues with either of them at all. In fact, pre-cancer life, I had considered having implants to give my girls the much needed lift they required, so shut up and get back in your box! There is nothing to get all huffy about.
Anyway, back to what I was saying, the fat is coming from my stomach to build my new left boob. This occurs on the 22nd of June.
Before that, I am into surgery for my Mr Kollias to clamp two arteries in my groin in preparation for the big kahuna surgery. This is what I am actually most worried about. Cutting open my groin on either side to clamp arteries and stitching me back up scares the bajeebus out of me. How painful does that sound? Anyone who has had severe period pain will be nodding their head right now. So, that is a five to six day recovery apparently. This will only be day surgery though which is a nice thought.
The next surgery, the big bazooka boob surgery, will be the 22nd of June. This is where the fat from my stomach will some how be schimmied up to my chest and a new boob will appear. I get a tummy tuck “Thrown in as a bonus in the deal” and a wiz bang new belly button.
Oh the haters are hating right now!
Enter – Lucky you have no feelings Mrs Wilkinson – because, as Mr Kollias examined me a few weeks ago, he confirmed my fat stomach was floppy enough to do the surgery with, my two year cancer check was clear, my lymphedema was being managed but, there was a problem with Miss Right Boob.
‘Oh, we can’t leave the right breast like THAT!’ where his words, ‘Oh, I’ll have to do something here’ he says has he flattens the breast, pulls at the skin, shakes his head. I really do wish to remind him sometimes that I am laying here WITH this breast attached to me! Sometimes I wonder if he forgets there is a person attached to the breasts he works on. Thankfully he and I have been friends since day two of cancer (just over two years now) so I can take his chatter.
That means, rightie is getting a make over too. She will be plumped up and made a little younger and prettier again. Another little bonus of this whole cancer crap I guess.
Here is the potentially uncomfortable image that may offend some viewers. This is my ‘love’. My part of the body I have grown to love and cherish, hide and feel ashamed off. This is the ‘war zone’ where the potential killer lay waiting to do its job before it was destroyed by the Army consisting of many people but the man out front was Mr Kollias, he was at the front line, taking out the bad guys and saving my life.
I shall finish this part 1 segment of ‘my new boob’ with the following
A tummy tuck is NOT A GREAT BONUS (I had cancer you idiot, the only bonus is life!)
Having a minimum of six weeks recovery will NOT be a welcome break from work you fool! (I had almost a year off work trying to beat this bitch called cancer!)
Income insurance will NOT keep our mortgage, bills, hospitalization, medicines, animal food, people food, general living expenses covered
Having perky breasts is also NOT A BONUS. I would take my pre cancer life back any day thank you (dickhead!)
No, having a ‘boob job’ or ‘reconstruction’ does not make it all worth it.
Private Health Insurance will NOT cover the costs of this (further information on this will be covered in Part 2)
Once you take tissue from a donor site on the body, such as the belly, it can’t be used again for breast reconstruction. So if you’re thinking about prophylactic removal and reconstruction of the other breast, you might want to make that decision before you decide on reconstruction. If you have TRAM flap reconstruction on one breast and then later need reconstruction on your other breast, tissue for the second, later reconstruction will have to come from your buttocks, inner thighs, or back. Or you can have reconstruction with an implant.
Because skin, fat, muscle, and blood vessels are moved from the belly to the chest, having a TRAM flap means your belly will be flatter and tighter — as if you had a tummy tuck. Still, a TRAM flap does leave a long horizontal scar — from hipbone to hipbone — about one-third of the way between the top of your pubic hair and your navel. In most cases, the scar is below your bikini line. After the skin and fat are removed from your belly, your surgeon may place an artificial mesh material to cover the area where the muscle was removed and then close the abdomen. If mesh is used, it stays there permanently. Your navel is then brought back out through a separate incision and reshaped.
This blog was inspired by a post I saw on Facebook by a fellow called Matt Strange. I have attached it to the bottom of this page for you to read through if you are interested. The language is a little ‘in your face’ but if you can deal with that, his message is so strong and true (In My Opinion).
Apparently 2016 was a terrible year. It was full of death and illness and war and destruction and so on. Well, I am not buying that. I think 2016 was a great year and I plan to focus on the great things that happened instead of dwelling on the bad. Why is it that we have to look at the bad things and focus on them so much? Why can’t we look at the amazing things that happened and focus on them too? Make the good things the conversation we start with instead of the bad? I am not saying that the bad things that happened should be brushed under the carpet but, why should these things ‘ruin’ a whole year? Yes, we need to learn new ways of doing things, change ideas and prevent situations and hopefully one day, LEARN to do things better in this amazing world of ours but, there are good things to look at too.
We aren’t on this planet for long and I feel that each and every day, good and bad, should be treasured and not brushed away or wished it over. So many people, and yes, I have been guilty of this too, wish for Monday to be Friday, October to be January, the year to just be over…… Why? Why can’t we all embrace the moment we are in? Why are we all wishing our lives away waiting for what is coming next? Why are we wanting Summer when it is Winter? Why can’t we enjoy Monday like we do Friday? Why can’t mid week before pay day baked beans on toast be just as delicious as pay day steak and vegetables? Is the middle of the year really worth wishing away as we try to hurry Christmas holidays along?
Well, I am grateful for 2016 and for everything that it has given me.
Here is my ‘short’ gratitude list……..
I had cancer. Why would I be grateful for this? Because I don’t have it now and because I have been shown that health and happiness, friends and family, good times and bad are all so important. I can now show empathy and understanding to people who are not doing so well health wise whereas before, I thought I understood but I had no idea at all. I can also now provide support, information and compassion to those fighting cancer or those who have someone they know dealing with it.
My mental health took a tumble. Yep, I am indeed grateful for this because it has made me realise that I can fall apart when times aren’t so good. It doesn’t mean that times will always be bad because I have been shown from counselling, friends and family, work colleagues, my doctor and medication that there is help and a way up and out of despair. My breakdown showed me that sometimes I do need to slow down, listen to my thoughts but not take them all too seriously, enjoy the simple things in life.
I have a job but more than that, I have a job that I love. In this day and age, work can be hard to come by for many people and I am incredibly fortunate to have a job that pays well, is interesting, has a good management group and one that I enjoy coming to each and every day. Having had so much time off this year (and last) to fight the cancer demon and to heal the broken ankle, it increased my love for my job. I have always enjoyed my job but not being able to do it for many months on end, not having a sense of purpose each day, missing the fortnightly income, it made coming back to work so much more important for me.
Friends and Family and Dogs and Chickens. This all speaks for itself but I will point out, I love that I have been able to see people a little differently this year. It has become clearer to me to see people who genuinely want to be a part of my life and those that don’t. The ease of removing some people from my circle, from my friendship, has been a very simple task and one that has been quite fulfilling and at the end of the day, easy. How lovely it is to have honest, loving, caring and friendly people in my life and not battle with the unease of having to stay ‘friends’ with a person/people who really have no interest or kindness in their heart for you at all.
Our Volunteer and Accident & Emergency Services. Australia has had many floods, fires, storms and accidents over the year of 2016 and each time, we have a bundle of amazing, generous people who head out to fix things up. These people miss important events in their own lives to make our lives that little bit easier. Weather they’re cleaning up storm damage, assisting someone involved in a car accident, fighting the dreadful fires, they’re not doing it for themselves. They’re doing it for all of us. When you see a police car driving down the road, instead of frowning at the possibility of getting a speeding ticket or a fine for an unregistered vehicle, remember, they’re often the first people on the scene in a fatal car accident. These police men and women have one of the toughest jobs I can imagine. Not knowing what each day will bring. They are not only there to give you a ticket but they’re also there to save your life. They will be there for us. The traffic jam you are stuck in making you late for a dinner date could well be because of a paramedic trying to save someone’s life who has been hit by a car. When you have no power to your home, there is a group of people working on that right at that very moment and on top of that, have you thought about how many people live without electricity each and every day of their lives? You have to detour on your way to work because the road is closed….. There are a group of people, out in that storm chopping up and removing a fallen tree from the road. These people, each and every one of them are amazing.
Our Beautiful Home. Having lived in so very many different houses, units and locations in my life, having a place to call our own has been sensational. I know how incredibly lucky we are to still have this home in our lives after the reduced income and financial setbacks faced over the last 18 months. More than that, our home is a place that has been filled with friends and family celebrating various moments and to hear the laughter filling the space is something I treasure and hope to have for many years to come.
Kindness. I have seen so many acts of kindness this year and often, it takes my breath away to see what people will do for others knowing they won’t be rewarded by being featured in an article in the newspaper, a headline on the news, a cheque or medal…… they are doing kind and thoughtful things simply because they can. I am lucky enough to work in the city of Adelaide and whilst I see many people screw their noses up at the homeless asking for money or cigarettes, I also see people giving them a sandwich, a $10.00 note, a kind word or even a smile. I have seen companies provide the less fortunate items in need, people raising money for families/people/animals in need. Not everyone has a lot to give but it is so nice to see people giving something, even if it is just a simple smile. Having been on the receiving end of such kindness over the years, I know how helpful and appreciated these acts are.
My Mum. Of course, all of my family and friends are important to me but something that really stood out this year is that I have my mum in my life. Each day we email each other to say good morning and discuss the traffic into work, what was on television the night before, our plans for the weekend and where we should go for dinner on our fortnightly dinner dates. Not everyone has this amazing opportunity that I have.
Sam. You all know why.
To live in Australia. A land of extreme temperatures, kind people, amazing landscapes and wildlife. A country of opportunity, freedom, fun and beauty. Yes, we still have a long way to go when it comes to understanding and acceptance in some areas but as a whole, what a wonderful country to be living in.
Well, that was my year in a brief summary on my soap box. Obviously, there were so many other incredible things to be grateful for but I would be here for days and months and by the time I finished, it may be the end of 2017 and I for one am not going to miss a single moment of each wonderful day I am still alive on this earth.
Here is the inspiration for my blog. I have left it as is without removing the language which some of you may find offensive and I am also not going to fix up those spelling errors. (I shall avert my eyes to them J
I wish everyone an amazing end to an amazing year. No, it hasn’t been all smooth sailing but for me, I have loved my 2016. I do hope you can find some good in your 2016 and I hope everyone has a wonderful, enchanting, fun, loved up 2017.
Right, Fuck it, I’m done with ‘OMG 2016 was terrible’, here’s some fucking awesome things that happened, you’re welcome, Merry fucking Christmas
There’s an Ebola Vaccine now
Child Mortality – Down across the globe
+9% survival rate in pacreatic cancer sufferers
Gene responsible for ALS found
Volunteers in India planted 50 Million trees in 24 hours
Suicide rates down globally
The Ozone layer is repairing itself
The Rabbinical assembly issued a resolution affirming the rights of trans and non conforming individuals
MIND CONTROLLED ROBOT ARMS
Leo got dat oscar
Wild tigers numbers up FOR THE FIRST TIME IN 100 YEARS
Giant Pandas – No longer endangered
A solar powered plane did a fucking world trip
Global Malaria down by 60%
Measels ERADICATED from the Americas
93% of the world’s children learned to read and write – the highest percentage IN HUMAN HISTORY
China plans to be completely renewable by 2020 and has a global plan for by 2050
Huge global push in renewable energy
Norway committed 0 deforestation, 0
Every major grocer and fast food chain in the U.S pledged to use cage free eggs only by 2025
Manatees – No longer endangered
Wild Wolves – Back in Europe
Wild Salmon spawning in the Connecticut river for the first time since the American revolution
Columbian white tailed deer – no longer endangered
Green Sea Turtles – NO LONGER FUCKING ENDANGERED
Sea World no longer breeding captive killer whales
Humpback Whales – NO LONGER ENDANGERED
Global aid – up by 7%
Americas most generous year EVER in charity and aid
China’s most generous year EVER in charity and aid at $15 goddamn Billion
Yes, some famous fucking people you liked died, and you know what – more of them are gonna go too
but take some time to look at the fucking good and beauty in this world, good shit is happening, learn it, support it, be part of it.
Well, didn’t I laugh and judge and gossip about it. Although, I did admit, and still do, that she rocks the shaved head but I am honest in saying I was one of the many who judged this poor girl. I had no idea that something can happen in your life, in your brain, to create such a self destructive act, a cry for help.
Everyone, including myself, thought that my life was just plodding along fine and dandy. What could be wrong now that I was now a ‘cancer survivor’, I wasn’t having any further cancer treatment. I had hair again, hair I could even style. Surgery was on the cards for a new boob, weight was being lost….. wedding plans were happening.
Now……… well, here I am after MY Britney Breakdown.
It turns out that PTSD (Post Traumatic Stress Disorder) is a real thing following cancer treatment. PTSD symptoms are different for each person and apparently, they usually develop within three months of a traumatic event but can also occur several months, even years later. For me, it was six months following the end of the cancer treatment. One would expect, after that amount of time, me to be happy ‘its over’ and on the road to ‘getting back to normal’ now that I don’t have to have any further cancer treatment. These expectations are not the case. Here is how it all unfolded…..
Aropax (Anti-Depressant and Anti-Anxiety Medication) 60mg
Tamoxifen (a synthetic drug used to treat breast cancer) 20mg
Avymys (works to decrease inflammation caused by allergy) 55 micrograms
Fish Oil (Helps to maintain strong bones) 1000mg
Duromine (Appetite Suppressant) 30 mg
Panadene Forte (Pain Killers)
Paracetamol 500 mg
Codeine phosphate 30 mg
Telfast (relieve the symptoms of hayfever) 180mg
Vitamin D Liquid (Strengthen Bones) 1000IU
Caltrate Calcium (Strengthen Bones)
Expectations (Beyond the normal day to day ones)
Lose a lot of weight in preparation for surgery – Breast Surgeon
Increase heart rate for a mininum of 30 days to prevent cancer returning – Oncologist
Stop smoking to prevent cancer coming back or developing a new one – Everyone (I did this one!)
Reduce or stop drinking alcohol to prevent cancer coming back – A lot of people
Reduce or stop sugar to prevent cancer coming back and to assist in losing weight – Some People
Continue to be strong – Me
Move on from cancer – Many people and myself
Stop talking about cancer – A few people
Have life return to pre cancer normal – A lot of people/myself
Upcoming Events Needing Thought and Action
Christmas gift buying
It seems I wasn’t coping with post cancer as well as I thought I was. I saw myself as a cancer patient, not a cancer survivor. I think I still do as a matter of fact but anyway, I was on a path of self destruction. Drinking too much, taking all of the above medication, I took up smoking (as previously discussed) and I wonder, did I do all of this to block out the self chatter in my head or to gain the attention some people feel I was seeking? I don’t know that answer but hopefully in time, I will find out.
The Day of my Britney Effect
I had a cold. No big deal right but it seems that it actually was a big deal. On top of all of the medications listed above, I was now about to add in 10 mls of cough medicine which would turn out to be the straw that broke the camels back (I am the camel).
My memory is vivid when I recall taking the small amount of medicine and within about 10 minutes or so, I became obsessed, almost manic in my thoughts. All I could think about was getting home from work, enjoying some sparkling wine (I had booked the following day off from work for some R&R) and not having to go to bed early. I knew I was meeting up with a lovely friend Nicole who was going to give my lovely locks a trim and then catching up with my 30+ year friend Tracey for a long overdue lunch.
I was only successful in one of my thoughts becoming an action and that was buying a bottle of my favourite Jacobs Creek Trilogy sparkling wine on the way home from work. I must say, that bottle disappeared real bloody quick and before I knew it, I was off to the bottleshop for another bottle.
This is where things get a little hazy. I vaguely remember saying goodnight to Sam when he went to bed. I vaguely remember playing some of my favourite games on facebook but then my memory is blank.
Before I know it, I am waking the next day and my hair is gone. I feel sick to my stomach and wonder what on earth happened. Where is my hair!? Somewhere deep in my brain I know it was myself that had cut it but why? How much did I cut.
Yep, all of it. Looking in the mirror when I got up was like a punch to the stomach. I could barely breathe, my hair had been cut in a drunken, manic manner. Some cuts were to the scalp and cuts were not so short and left tufts sticking out.
These tears continued for two days! TWO DAYS! I couldn’t focus, I couldn’t eat, decisions were impossible…..I couldn’t cope. And it really wasn’t even about the hair to be honest. I was so lost, confused.
I hit rock bottom.
I was suddenly aware that life wasn’t what I thought it would be after cancer. In fact, it was so much harder coping with life after cancer than it was during cancer. Do you think that is weird?
During cancer my life was taken care of by everyone but me.
GP – Tells me I have cancer and proceeds to book me in to see a surgeon immediately
Surgeon – Tells me he is the captain of the ship and it is his job to save my life. Then provides me with an Oncologist for the next step
Sam – Takes on all responsibilities of getting me too and from all appointments, provides my medications, fluids, foods, hugs and kisses. Cleans house, ensures I shower, sleep, wake, rest, laugh, changes linen on regular basis….
Mum – delivers flowers to my house weekly upon her visits
Nurses – Provide all of the compassion, caring and patience needed during hospital stays, chemotherapy treatments, radiation treatments, scans, blood tests,
Oncologist – Prepares a schedule of chemotherapy treatments, blood tests, herceptin treatments and provides me with a Radiologist
Radiologist – Schedules all of my radiation treatments, sees me on a weekly basis to check my radiation wounds, provide input on creams and treatments for healing
Radiographers – Tell me where and how to lay on the bed in preparation for treatment, count down via speakers for holding my breath when the radiation occurs, help me off the bed and have lovely chats with me about my dogs and life
Friends and Family – These amazing people do all of the visiting me, calling and texting and emailing me to check up to see I am doing ok, to fill me in on their lives, to make me smile and fill my house with flowers and cards and gifts
Private Health Insurance – Pays many of the bills received from having this disease
Income Insurance – Pays me 75% of my wage each month
The Bank – reduces the mortgage payments to assist in our treatment costs
After cancer – Where is everyone?
I was hugged and waved goodbye by the beautiful and amazing nurses at oncology on my last day of Herceptin
Hair grows back and I no longer look ill therefore, am expected to get on with life as normal
Normal doesn’t come along as easy as I thought
Banks and other billing companies are no longer so accommodating if bills are late due to ongoing financial burdens because, cancer treatment has finished
There are no more cards and flowers
No more nurses to make you smile and compare stories of the weekends with
There is nothing very interesting to talk about anymore
Fatigue and vagueness are still in my life
Surgeon is no longer so cuddly and caring but is now demanding and stern
I’m not skinny from cancer treatment like those in movies and TV shows
I am not needed by the cancer community anymore
People aren’t contacting me about their friends or family who have been diagnosed with this illness for me to help them, to talk to them, provide advice and friendship…..
Step 1 – Phone the Cancer Council day Friday 28/10/2016, 1 day after beginning of break down, and receive emergency counselling over the phone and book a face to face session. Confirm there is no risk of self harm and be unable to manage any part of a conversation without crying. Find out about PTSD, Survivor Guilt, Fear of Further Cancer, Loss of Identity…….. there are so many issues, mental heath problems, that can occur after cancer treatment has finished. It isn’t always easy to become a cancer survivor and ‘just get on with things’.
Step 2 – Phone Lisa at the Lobethal Hair Studio to fix the mess and destruction on my head. Find it impossible to stop crying the whole time I’m there. Listen to words of wisdom and good advice. Having someone who knows me so well that knows, it isn’t really about the hair……….. it is more than that.
Step 3 – Attend GP for further emergency assistance. GP proceeds to take away ALL medications and alcohol except 20mg of Tamoxifen (1 tablet for assistance in preventing further cancer) each night and 10mg of Lexipro (Anti Anxiety Medication) each morning. If I develop a headache at anytime, I am to take nothing stronger than panadol. GP books fortnightly catch ups but advises me to attend the surgery anytime between appointments if I fall apart or it gets too much again. The reason for the alcohol being stopped is because now I have no more hair, what happens if I ‘blackout’ again? I have no more hair to chop off and next time could be a lot more dangerous eg: getting in to a car, walking the streets (there are a few lakes and dams around Meadows) etc….
So, it has now been two weeks since this ‘all went down’. Some days I cruise through and other days, I am fighting to swim against my current of tears…… Nothing sets me off into the spiral of sadness and it is hard to find something to drag me out of it, try as I might.
I am thankful for some incredibly amazing people who have made it their priority to ensure I know they’re there for me. I want to thank
my amazing managers for letting me blubber my way through some attempt at explaining what was wrong with me,
for my Bulldog Veronica for fielding all queries about me, shuffling people away from me, standing up for me, protecting me,
Vanessa who sends the loveliest words which are so genuine and kind, caring and thoughtful,
TK for becoming my ‘stalker’ by sending texts filled with ridiculous world laws, funny photos of her little man Zander, memes of feelings, all while struggling with her own illness and sadness’
Tamara, my amazing friend and cousin who has been there before, during and after all of the cancer bizzo sending me her ‘minimum of three things to be grateful/thankful for’ each day and for accepting mine.
My Mum for bringing flowers and smiles yet again for this new event in her eldest daughters life.
My incredible in laws to be for their hugs and understanding in a certain matter (they know what I am talking about) and for their constant undying love for me
John and Clare Mannion for listening and offering lovely words
My work colleagues for putting up with me shuffling around from floor to floor to hide from the world for a while
The Cancer Council of South Australia on Greenhill Road
My friends and family who have, and are, allowing me to cancel all dinner, party and catch up confirmations to deal with this issue
That incredible, amazing, loving, supportive, cuddly, funny, compassionate man of mine Sam. Yes, he was angry initially not knowing what on earth was going on with me and thinking I’d gone on a bender looking for attention. That thought didn’t last long, he realised pretty quickly there was more to it. Sam was there for me taking me to the GP for emergency help and also joined me for counselling at the Cancer Council.
I will leave you with some bullshit comments that some people felt the need to say (weather to me or someone else)
What on earth did you do to your beautiful hair? It was looking really good! It really was so lovely and curly (my note: it was not curly ok!?) and so pretty. Why would you get rid of that?
My side note on this comment – This comment was made to my face by someone who is an associate, not a friend, not a family member but they felt they had the right and need to tell me that my hair looked terrible. I wonder, how would they feel if someone went to them and told them their recent hair cut looked terrible and why didn’t they just leave their hair as it was?
She is obviously just wanting more attention
My side note on this comment – Um, really? Thanks! I think most people would understand it goes a little deeper than this
Why on earth would she have ‘issues’? Isn’t her cancer finished? What is her problem now?
My side note on this comment – Firstly, cancer doesn’t FINISH. Secondly, unless you have had such a horrible, emotional, physical event such as this, do not assume you know what it is like ‘once the cancer has finished’ as you put it
The comments I LOVED and heard from a few people were
I’m not sure why you cut your hair but I LOVE IT! It really suits you
This comment was awesome because I didn’t have to explain why I cut my hair, I wasn’t made to feel ugly, stupid, crazy or weird.
I don’t meant to overstep any boundaries but I want to ask because I’m worried…. you don’t have cancer again/you haven’t started chemo again have you?
These questions were honest, real, true and there was no other meaning to them other than what was said.
Remember how I told you that my surgeon wants me to lose weight, 7.5 kilos by the 10th of January, 2017? Remember how he told me to ‘just stop drinking alcohol’?
Remember me thinking, AS IF that is going to work.
Well bloody hell.
6 days of no alcohol and I lose 1.2 kilos!! WHAT?
Ok, people MAY have told me previously that this was the way to lose weight but I really enjoy a drink here and there. I am a great dancer and singer when I have had a couple of drinks. I love those little bubbles tickling my nose……
So, to celebrate my weight loss, I attended my niece Tarins 18th, niece Kallys 7th and nephew Jordans 10th joint Birthday Party on Saturday night and drank my weight in bubbles!
Right, I’ll get back on that ‘no alcohol’ diet of mine and see what this week brings.
Oh, just one more thing before I go…. I did this at the party 🙂 Annette is my sister and I think she was a little tickled pink with this bottle of wine.
See you next time, when I am even skinnier (and still sober).
Facebook kinda shits me here and there as to how commercial and whatnot it is but, there are times, when I get that ‘Facebook Memory’ as to what I posted a while ago and, this came up today. I remember so clearly this photo being taken and even though my gorgeous daughter was being silly, I still felt an amazing sense of pride for being her Mum. Nine years ago this photo was taken at my cousin Christine’s 40th Birthday party! OMG, that means my cousin Christine is going to be….. 50 oh so soon. Anyhoo, this photo of ‘the kid and I’ is very special to me. It is before I became a Coeliac and before I knew I had stage 3 breast cancer.
So, this was the week for me to meet with my surgeon to discuss the surgery I want/need early next year. The reason I would like this surgery early next year is because
I would like to be done with Breast Cancer
My wedding is in November 2017 and I would like 2 boobs for it
What does it matter? Just give me another boob please!
So, off to Mr Jim Kollias on Wednesday to discuss my upcoming surgery and to have my 6th monthly Breast Cancer check. Actually, from here on in, I am thinking I wont bother with writing breast cancer with capitals. I recall from school that capital letters were for proper words and those of being ‘important’. Well, you know what Oh Serious Breast Cancer? I have demoted you to lower case from now on!
Right, now we have that straight, let me continue…..
Mr Kollias has many names throughout South Australia and most of them good. Don’t get me wrong, I am going to BAG the SHIT out of him in this post but know this, he is the best in the business ok? Anyhoo… this is how it happened….
Into the lovely little office I went, went through the formalities of me looking great and me saying thank you blah blah and, off to the back room I go to rid myself of my tops and bras and sit on the bed to wait…
Now, keep in mind that Mr James Kollias, being the best in the Breast Cancer field in South Australia, keeps you protected, safe and bubble wrapped the entire time you are dealing with breast cancer. He will do everything humanly possible to rid your body of the cancer and make you feel A OK. You only have to do as you are told and he will make everything happen for you.
Once your breast cancer has been cut out, chemotherapied, radiologied, blitzed with drugs and sleep and some more drugs and more surgery, then comes along the true to life, the honest and IN YOUR FACE Mr Kollias.
There are no more warm snugly cuddly hugs of comfort, no more Mr Nice Guy.
He has always told us how it is when it came to my Stage 3 Breast Cancer but, I always felt safe and snuggly within his words. He was the Captain of our Ship. He would ensure everything happened correctly and his way. My only job on this ship was to follow his orders.
And I did feel all safe and snugly and protected and loved. Until NOW.
Now, I am FAT and ROUND!
On Wednesday the 5th of October 2015 (311 Days Since Mr Kollias and I met) I was meeting him again but this time to discuss my Reconstruction Left Breast Surgery.
I am requiring, wanting and possibly even needing a particular surgery called a TRAM Flap. TRAM stands for transverse rectus abdominis, a muscle in your lower abdomen between your waist and your pubic bone. A flap of this skin, fat, and all or part of the underlying rectus abdominus (“6-pack”) muscle are used to reconstruct the breast in a TRAM flap procedure.
While it’s the most popular flap reconstruction procedure, a TRAM flap isn’t for everyone. It’s not a good choice for:
thin women who don’t have enough extra belly tissue
women who already have had multiple abdominal surgeries
women who plan on getting pregnant
women who are concerned about losing strength in their lower abdomen
So, my big belly and myself are thinking, HOOK ME UP BIG BOY, because I am none of the above and more than that, HOOK ME UP TO THOSE SKINNY BITCHES THAT DON’T HAVE ENOUGH EXTRA BELLY TISSUE, I HAVE ENOUGH FOR EVERYBOOOOOODY.
Mr Kollias does not find this helpful OR amusing. Sometimes I wonder how Mr Kollias and I even get along!
Right, back to it….
I am now laying on the medical bed which is not comfortable nor relaxing and Mr Kollias starts the examination. I would have assumed he would have started with Ms Rightie, my lonely breast that stands alone… but no, he starts with my belly. He GRABS a big fist full of the belly area and wibbles and wobbles it up and down as though it isn’t actually attached to me (BUT IT IS) and says,
“Wow, this is very large. YOU are incredibly ROUND’. This is a lot of FAT”.
I kid you not!
I am laying on this bed, with my one amazing but sagging boobie and my big gutses hanging out, feeling oh so vulnerable while he, the amazing Mr K, proceeds to tell me how round and fat I am.
I KNOW I AM FAT FFS!
No, I do not say this out loud.
So, as I lay on that oh so uncomfortable bed, with my gutses hanging out, trying to think of something else, he, Mr Kollias, is grabbing handfulls of flab (yep, that’s my stomach) wibbling and wobbling up and down, still saying the words ROUND and FAT and I CAN’T WORK WITH THIS, I sink deeper and deeper into some daze like meditation.
Ok, I am no fool. I know I am fat. But for f*cks sake. Give me a break! I can’t use the ‘cancer card’ with Mr Kollias because he has been there with me from start til now. He is trying to tell me that
The more fat I have, the more likely I will be to get cancer, especially breast cancer, again
He can not operate on a fat person due to the risks involved
He can not operate on a fat person for a TRANS Flap thingy without putting them ‘at risk’
Right then, after four rounds of him grabbing my gutses, told I am ever so ROUND, and that he can’t operate the way I want without a risk, It is thankfully now time for me to dress and smash his face in.
Ok fine, I didn’t smash his face in but I really wanted too!
Anyhoo, I dressed and went back to his ‘meeting room’ and sat in front of him while he proceeded to tell me that he can not do the surgery I wanted because I was EVER SO ROUND.
Right, he says to me that in order to do the operation the he and I want to have done he wants me to lose 10 kilos by January 10th.
I’m not sure if you remember he wanted me to lose over 20 Kilos previously but I would be dead if I tried to do that so, we are negotiating now like a car buyer v’s a car salesman. Mr Kollias is the Salesman ok?
We go back and forth for a while and agree on a 7.5 Kilo weight loss for him to do the surgery. That means I have to be below 75 kilos by January 10th, 2017.
Oh so easy I hear you say. IT IS NOT EASY I SCREAM BACK AT YOU!
Ok fine, I’ll try to calm down but let me finish with the conversation with the ever so amazing Mr K.
I tell him that I tried to lose weight for him from our previous catch up which resulted in breaking two bones in my ankle.
He says, hmmm, that’s really just an excuse.
I say, well, I am a coealiac and don’t eat any junk food… and he just glares at me.
I then tell him I have lost 2 kilos recently and he says, two kilos is not a weight loss, it is a poo! and then proceeds to blow a raspberry at me!
Then, I tell him I have started taking duromine and he tells me that chemicals are NOT the answer.
Right about now I should be receiving a bloody award for ‘not murdering’ someone.
There are no awards coming my way, no cameras and bunches of flowers or miracle weight loss fairy dust, just Mr K looking at me.
So, I say to the ever so amazing Mr Kollias, “What do you suggest I do?” and his reply, (get ready to inhale a big disgusted gasp”
OMG, is that even legal? Are you aloud to say that to me?
Well, I think yes. BUT, the problem is, now that I am taking this Duromine (appetite suppressant which I think is broken) my meal sizes have reduced, I’m not snacking anywhere near as much as before blah blah blah….. and then I quietly, under my breath, say….. Do you think I should stop drinking alcohol?
Well, doesn’t that open the bloody flood gates?! Out it all comes from the Breast Cancer God of South Australia telling me if I stop drinking today, I’ll lose 3 Kilos in a week and then I’ll lose another 3 kilos in the next three weeks which is almost at my goal weight for the surgery!
He is looking at me like I am some very backward hick born child!
I haven’t even told him how much I drink (Thank Goodness!)
So, There we have it peeps.
As I sit here, looking at my lovely glass of sparkling wine, I know that it is one of the last as I HAVE TO LOSE THIS WEIGHT. Not just for Mr Kollias but for myself to have the surgery I want.
There is an alternative surgery involving using my back fat with expanders and then silicon blah blah but no, that isn’t what I want.
I want the stomach one, where there will be no artificial products in my body.
After all of the chemo and radiation, I am thinking I would like to repair my body with my body.
So, There we have it.
I have been angry, sad, angry again and everything in between since my appointment with Mr James Kollias on Wednesday but, at the end of the day, he is only doing what is best for me.
What really shits me through all of this is, I forgot to tell my amazing and incredible surgeon about the lump I was worried about! Thankfully he had done a thorough examination while I was there of good ol’ rightie and obviously didn’t find anything to be worried about.
Sorry it has been so long since my last post. Thank you for all of the ‘behind the scenes’ messages and in my face messages.
Love to you all. Stick with me. I am doing this ok? I am going to give it my all to lose that darn 7.5 kilos.
A thank you to the Encore Program for taking me in. I am going to fill you all in about this Encore Program from the YWCA soon. Hopefully, work works with me on this one 🙂
I don’t do shout out’s very often do I? I am going to today.
My shout outs are…
Veronica Stanbridge : for listening to me sook and cry and worry about the stupid lump that turned out to be nothing. I know how hard this is for you to relive this horrible disease after your amazing sister Maggie passed away from it. Veronica ‘Amazing’ Stanbridge is in the black 🙂
Mandy Azzam: Yep, I might know when you are not coping with things but you give it back knowing when I am not doing so well. I love that you leave me be until our lunch dates when I let it all out.
Tamara Martin: You always know when I’m having a bad day. Not through my actual voice but through the voice of our emails. Thankyou for knowing when I don’t want to talk but really want to talk. You know me too well.
Everyone in my life means so much to me. Please don’t be displeased to not find your name here but it is Friday night after a huge week at work and, it has been a tough week for me. Everyone who is in my life, with true honesty and love (eg: no backstabbing or bullshit) means so much to me.
What’s Duromine? Well, in simple terms, it is an appetite suppressant. Less food, apparently, will make me less fat.
At $98.00(Aust) a script, which lasts one month, it had better bloody work. Thankfully, my health insurance covers $57.00 of it so that really works out to about $1.36 per capsule, which I take one a day. That isn’t bad really when you think of the cost of snacking and excess eating. I am actually saving money by being on this stuff.
So, I started the ‘wonder drug’ 7 days ago and am taking the lowest dose possible being 15mg. This is because it can interfere or react with Tamoxifen. I take this tablet each morning at about 5:30am with my breakfast of a tuna and baby spinach wrap. I find no urges to eat until lunch time and even then, I have to remind myself that I need to eat. Lunch is something simple like a small fruit salad and yoghurt or a tin of tuna with a small salad. Dinner is something like a small seafood stirfry with brown rice or a piece of steamed fish and veg.
How have I done in the 7 days?
I have lost a grand total of ZERO!
Yep, not even a hundred grams. A big, fat, round zero.
At least my lack weight loss matches my body shape.
Ok, so this week hasn’t been very normal with having surgery on Wednesday (which I should have lost 5 bloody kilos because I fasted from 7:30am until 7pm!) and have had a sneaky glass of bubbles or two but seriously, come on! Nothing? Not one little gram of weight loss?
I shall not give up though. This stuff is going to work. I already feel better being on it because of the reduced food intake.
Are you curious about the side effects? So many people have an opinion on Duromine weather they’ve taken it or not.
These have been my side effects.
Dry mouth (water fixes it everytime)
Slight headache in the first couple of days
Vagueness (said good morning to the same person twice one day)
Tiredness in the first few days
Obviously, each person is different with medication and side effects but these have been mine which I was quite pleased about.
Lets Not Judge Amanda Bailey.
I thought a lot about writing this blog about being on Duromine because, as a society, we love to judge people. Put them down for whatever we can. Does it really make us feel better to do this? Does it improve our own lives to judge and gossip about someone else?
My answer is no. What’s your answer?
I decided, obviously, to write this because I feel I have been honest and transparent since I began this blog and for anyone who ever read my previous blog called I WOKE UP FAT, will know that I am probably a bit too open at times.
My fat life started approximately 9 years ago. Initially, I thought it was due to being diagnosed as a coeliac (allergy to gluten) and I still feel this has a big part to being a big girl but also, as my relationship with Sam progressed, so did my weight gain.
The meals I ate were often the same size as Sams meals. This is not healthy! I should not be eating the same amount as a grown man who does manual labour for a job. I am an office worker perched on my bum all day.
I did spend a year at the gym a few years back and had very good success in losing 18 kilos. It meant I was at the gym 5, sometimes 6, days a week, my diet was impeccable and I was motivated.
Once I had gone from being 95 kilos (Yes, 95 whopping kilograms) down to 78 kilos, it all stopped. My weight loss journey seemed to be over. Try as hard as I did, nothing was budging. Then, as happens with many people, I got frustrated and fed up and GAVE UP.
Fast forward a couple of years and whilst I haven’t gained all of that weight back, I have gained a couple of kilos and am still very fat. I am only five feet tall so, carrying more than say, 60 kilos, is a lot of weight for a little person like me to carry.
My starting weight, 7 days ago, was 81.9 kilos. Wow, I am putting it all out there aren’t I? How many of you would happily put your weight and age out into the big wide web for lots of little judgemental gossipy eyeballs to read?
So anyway, I am on this Operation Duromine to lose weight for the upcoming surgery being my breast reconstruction. It is a short term ‘fix’ and my fingers are crossed it works. I am hoping to have this surgery in January, 2017.
Obviously walking wasn’t going to do it because after breaking those couple of bones in my ankle and leg, it made walking a wee bit tedious.
Oh, about that. The surgery on Wednesday went really well (they removed two of the pins holding my bones together) and aside from that huge long fasting session, it all went without incident. I did meet a wonderful lady in Recovery who is the sister of a work colleague. She was just gorgeous and caring and kind. Thanks for looking after me Mim.
Hopefully, I can start walking again comfortably and carefully to kickstart this weight loss that my surgeon, Dr Kollias, is adamant I must do. He would like me to lose 20 kilos prior to my surgery which not only will make me look and feel better but will also reduce my chances of getting breast cancer again.
This is not a ‘commercial’ for appetite suppressants but more a journal for me (and you if you are interested) to see how I travel with this weight loss stuff.
So from me, my big fat 0 weight loss, I bid you farewell… until next time xx
2007 V’s 2016
Uniden Digital Camera
Ps: The gorgeous lady in the photo with me is Author Tamara K Martin. Keep an eye on your bookshelves people, her writing will be out for you to buy and read soon 🙂
I am a man who believes romance should never die, movies make for a great night, custom suiting is a must and creating a legacy is one's purpose. A man who holds true to this understands the gentleman's lifestyle.
Setting the world straight by complaining about and making humorous remarks towards our problems while providing solutions we should all live by. Cus' we're just really pissed off about a lot of things.