I am NED

ned

NED stands for – No Evidence of Disease and that is what I heard today after my mammogram and ultra sound!!

Continue reading “I am NED”

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Another Lump….

One thing many cancer survivors mention is the fear of it coming back. That ache or pain or lump or bump could be ‘it’ again.

Well, I have a lump. This time, it is in my other breast. Well, I shouldn’t really say other because I only have one left now so it is in my breast. I assumed that I was being a hypochondriac prior to seeing my doctor last Saturday and that he would brush it off, tell me I was being silly and send me on my way.

That didn’t happen.

He is concerned. Shit shit shit.

Tomorrow afternoon I am off to have a mammogram and ultra sound.

The way I figure it, NOTHING could have survived the recent chemotherapy blast that lasted six months. Surely!!??

It is a decent size lump too. Not a little one but a biggin. I don’t really want to be the 1 in 20 to get it again (these are the amazing odds my doctor gave me of getting cancer again, 1 in 20!). I have barely even recovered from my last bought of cancer.

The only thing that keeps me calm is the fact that I have been there and done that and can do it again if I have too but naturally, I really don’t want too.

I am still tired from the last cancer. I am still having herceptin and heart scans and tamoxifen and massage from the last cancer. Why can’t cancer be a one time only illness?

And another thing…. My hair is looking amazing! I can’t be losing it again so soon!

On a brighter note, I am absolutely loving being back at work. I love walking the floor and riding the elevators. I love that I say hello to people and have a sense of purpose each and every day.

One of the greatest things I took from my cancer ordeal was that life is too short to give a shit about things that are not important. If someone doesn’t like me, who cares? If I go to lunch a little late, it really doesn’t matter. The bus is late? Early? Too hot? Too Cold? It doesn’t bother me. I am happier today than I have ever been and I plan on staying this happy. No body can bring me doooooooown.

The best news of all from the last week is …. we have a wedding date!! It isn’t forever but we have the date. Do you see a problem with getting married on Remembrance Day? I would be really interested to know of peoples thoughts but I am loving the idea of being married 11/11/17. How lovely does that date look? I have looked at catering companies for my relaxed home reception, I have sent a message to Carol (the lady who owns the tree property) to ask if I can be married there on the date 11/11/17. I have even looked at pretty dresses for my gorgeous daughter to wear. Now, all I need to do is lose 20 kilos, grow some more hair, save save save and get married 🙂

Now, I’ll let you in on something.

Just before I was diagnosed with Stage 3 Breast Cancer in April 2015, I fell in love with a song that has such beautiful words but ends so sadly. This song really hit home with me and I even talked about it with Sam. Then, driving home after my cancer diagnosis after the mammogram last year, this song played on the radio and I cried and I cried. I do not want to be a part of this song. Here are the lyrics. If you get a chance, listen to it because as sad as it is, it really is beautiful.

JAMIE LAWSON LYRICS

“Wasn’t Expecting That”

It was only a smile
But my heart it went wild
I wasn’t expecting that
Just a delicate kiss
Anyone could’ve missed
I wasn’t expecting that

Did I misread the sign?
Your hand slipped into mine
I wasn’t expecting that
You spent the night in my bed
You woke up and you said
“Well, I wasn’t expecting that!”

I thought love wasn’t meant to last
I thought you were just passing through
If I ever get the nerve to ask
What did I get right to deserve somebody like you?
I wasn’t expecting that

It was only a word
It was almost misheard
I wasn’t expecting that
But it came without fear
A month turned into a year
I wasn’t expecting that

I thought love wasn’t meant to last
Honey, I thought you were just passing through
If I ever get the nerve to ask
What did I get right to deserve somebody like you?
I wasn’t expecting that

Oh and isn’t it strange
How a life can be changed
In the flicker of the sweetest smile
We were married in spring
You know I wouldn’t change a thing
Without that innocent kiss
What a life I’d have missed

If you’d not took a chance
On a little romance
When I wasn’t expecting that
Time doesn’t take long
Three kids up and gone
I wasn’t expecting that

When the nurses they came
Said, “It’s come back again”
I wasn’t expecting that
Then you closed your eyes
You took my heart by surprise
I wasn’t expecting that

Shut Up!

At the risk of being unpopular, sounding like an ungrateful person, this is something that is really starting to piss me off. I need to talk about it and just put it out there. I do not wish to offend any person and I am not dismissive of the awful times people go through with losing someone so close to them through cancer. My heart and love goes out to everyone who has been touched by this awful disease.

Having said that, I am still strong on my opinion of asking to please, consider your topic before discussing it.

I am a pretty easy going person. I don’t care what a persons view is on religion or politics, I really don’t care where you live or who you live with, black, white, gay, straight, man or woman, dog or cat……. I can pretty much talk to you about anything without getting offended or feeling out of place. And yes, I will even talk to dogs and cats.

Talking about anything and everything is pretty interesting to me because I love hearing about things that I don’t know about. Oh, unless it is about retaining walls and storm water flow. Those topics generally bore the shit out of me.

Recently, I finally found another topic that many people want to tell me about that I have no interest in talking about.

Death from Cancer.

Now, it seems, so many people want to tell me about a family member, friend or someone who died from cancer.

Shut. Up.

Do I look like I want to hear your story? No, I don’t want to hear your story. Although I am terribly sorry you have had to go through such a loss, I wonder why you think I want to hear about it.

Sometimes I really feel like saying, oohh, do you have another story just like that to tell me because that one made me feel marvelous! Please please tell me another story about someone else who had breast cancer or another type of cancer and died.

You are telling me about someone who had the same or similar illness as myself and then letting me know (as if I don’t think about it a hundred times a day already) that it kills people.

Shut. Up.

I know people die from cancer. We all know people die from it. What we cancer survivors do not want to hear about is how it can kill them.  Cancer survivors are not free of cancer. We have fought for our lives but it doesn’t mean we wont have to do it again. We hope we never have to fight like we did for our lives but most of us have it in the back of our minds. Is the cancer still in our bodies?

You do not tell a new mother about the awful death of a baby you know about.

You do not tell a parent sitting by their sons hospital bed following a car accident that you know three people who have died in car accidents this year.

You. Shut. Up.

Why do people feel so comfortable talking to a cancer survivor about the death of other people from the same horrible disease?

Do they think we feel ‘lucky’ to have had cancer and still be standing here today?

It is not up to you to ‘make us feel better’ with these stories.

Please, stop talking to us about deaths caused by cancer. It is not a conversation I wish to be a part off. That may change at some stage but today, no, I do not want to hear it.

Shut. Up.

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Thank you Samantha for these beautiful flowers that are all starting to open. xx