Lets talk about this new drug that I started taking 8 days ago.
Tamoxifen.
This drug is designed to blog the hormone, estrogen, which is what caused the breast cancer in the first place apparently.
I’ll start with the conversation with my amazing (and a little bit spunky) Dr Sid Selva.
He started the discussion with the fact that I’ll be taking it for ten years. Then he bored me with the details of what it does and how it may prevent further cancer blah blah blah. Then, he got to the side effects.
Now, anyone who has persisted in reading my blogs will know that I don’t use the term ‘side effects’ and instead call them feelings. Well, these are side effects.
When he started listing these side effects, I thought to myself…
“If this was a game show, I’d be the bloody champion because I already have all of these side effects without even taking the drug…. go me!!”
So, I started telling Dr Selva what I already had, and that I was way ahead of the Tamoxifen side effects. Here are the ones I have already….
- Weight Gain
- Irritability
- Reduced Sex Drive
- Hot flashes
- Anxiety
- Confusion
- Sweating
- Absent Periods (Yippeeeeeee)
- Hair Loss or Thinning Hair
- Inability to keep or get an erection (I put this in because it was on the fact sheet LOL
So, as you can see, I have quite the list already and I hadn’t even started the drug yet.
Now, for the interesting thing he said…
- Dry Vagina
What?
I said to the doctor (because when I think things they often shoot out of my mouth without any filter),
“is my vagina supposed to be like a dogs nose?”
Dr Selva, who I have never seen flustered or lost for words just sat there and looked at me with the biggest eyeballs I had ever seen. Ooops, wrong question perhaps?
I was getting worried internally thinking, OMG, I have had a problem with my vagina since forever because it is never ‘damp’ or ‘wet’ constantly. Maybe that is what those little panty liner things are for that I keep seeing advertised and never understood. Why has no one ever told me I should have a wet vagina?
Thankfully, Dr Selva explained the term ‘dry vagina’ refers to not being able to moisten during intercourse. OMG, how embarrassing! I could feel my entire face and body turning a lovely shade of beetroot!
We moved on pretty quickly after this topic.
Right, next we will look at what happened when I actually purchased my tamoxifen.
There is a lovely young fellow at the local pharmacy who covers for Mary on Tuesday, Wednesday and Thursday. It was him that I saw to get this medication and he asked if it was my first time using it. I stated it was and that I would be on it for ten years and he says….
“Did the doctor discuss pregnancy and tamoxifen with you?”
Oh man, this happens to me waaaay to often, I really need to lose weight so I said, that isn’t an issue as there will be no more pregnancies for me. I stated I was too old for that. Usually I let the person know that I am just fat and not pregnant but I didn’t want to fluster my already flustered pharmacist so I left it at that.
So, I have now been on this medication for eight days and OMG, the side effects are INCREDIBLE. Well, there are a couple that aren’t but seriously, the main side effects are awesome.
I have always been a sleeper. I could easily sleep 12 to 16 hours if I wanted and often, I did want! Now, I am awake before 6am and I mean, really awake. I am ready to roll.
The energy I have is also incredible. Yesterday, I was up at 5:50am, had some coffees, played some computer games and out of no where, I decided to take Brady to the beach. I live in the Adelaide Hills so it isn’t a five minute drive to the beach but off we went. I forgot to put a bra on, lost a shoe at the beach (it is still there at Aldinga Beach South Australia somewhere. I left it’s partner on the picnic bench so if someone finds one shoe, they can go on a hunt for the other hehe) but, Brady and I had the best time. We walked and walked and he chased the tennis ball in and out of the water.
I am also feeling incredibly happy and social so I popped into the future in laws house on the way home, had a cuppa, chat, play with the dogs and off I went again.
Once home, I had my breakfast, vacuumed the floors, mopped the floors, cleaned the main bathroom and toilet, cleaned kitchen, roasted tomatoes in preparation to make passata (tomato sauce for pasta) and also cooked dinner!
- I don’t wash floors (Sam does it)
- Rarely do I cook dinner (Sam usually does it)
- Once in over a year have I cleaned the main bathroom (Sam does it)
- I have never made a home made tomato sauce
- I am usually exhausted after only one of the above activities
So, all week I have risen from bed on or before 6am naturally except on Wednesday. I did wake before 6am but that was due to a horrible headache. Yes, this is another side effect from the Tamoxifen as well as incredible joint and bone pain. I am taking panadol for this but a lady on the Adelaide Breast Cancer Friendship Group site recommended I take Theracucumin with a pinch of black pepper for the pain. I will be hunting this down today because I do not fancy taking panadol every four hours for the next ten years.
Boy, that was quite a long post! Sorry if I have bored you but this is how much energy I have. Even my fingers are going crazy with energy that I just keep typing LOL.
I shall leave you now with another acklompishment for the week. Managing to get both dogs to sleep on their beds at the same time in the same room. They usually sleep on the sofa (before being found out and shooed off) or the carpet. Finally, they are on their beds.
Love the photos! That’s an awesome list of ‘feelings’ you have there, sounds like the menopause with the added bonus of Wonderwoman’s energy 🙂
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Thank you for your kind words on my photos. Dogs are easy to photograph and make someone happy hey? I am thinking the same with menopause but didn’t think about Wonder Womans energy but now that you mention it…… hehe. Maybe I do have her energy, now, just to get her figure!
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So…about the vagina dryness…it’s real! This is my least favorite side effect so far. If you happen to experience this, I suggest you get a moisturizer with no estrogen right away. Don’t wait like I did. It gets worse, to the point where every exam hurts. Replens and Hyalo GYN are highly recommended. I was allergic to Replens but Hyalo is great. Your GYN will be able to recommend others as well but be sure they are estrogen-free.
I wish you good luck with Tamoxifen. I am supposed to be on it for 10 years too but I might take a break this year…we shall see.
Your dogs are adorable!
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Oh No! I was hoping it was one of those very rare and hard to get side effects. I am sorry you have had to deal with this on top of everything else. Fingers crossed I dont get it. So far, I am suffering terrible bone and joint pain but was advised to purchase Theracucumin which seems to be reducing the pain symptoms already. I bought it on Friday and today, Monday morning, I am feeling less sore than previous days.
Thank you for your kind words on my beautiful dogs. xx
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I like the sound of all your energy, Amanda, and I hope it keeps up for you. I am still at the stage where I have to lie down for a while after doing some activity. I can do about 1 hour, then need a rest. I’m hoping this will improve as time goes on
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